Be Your Own
Best Advocate
You do not have to become a cancer expert overnight. You do deserve to understand what is happening, know what choices may exist, and be part of every decision about your life.
Advocacy is not about being difficult.
It is about being present. Asking until you understand. Making sure your priorities are heard. Inviting more expertise when you need it. And remembering that a recommendation is the beginning of a conversation—not the end of your voice.
Small actions can change the conversation.
Know Your Cancer
Know the exact diagnosis, stage, where it has spread and what your team is trying to accomplish.
Know Your Testing
Ask what biomarker, molecular and inherited genetic testing may matter for your cancer.
Build Your Team
Medical oncology is one voice. Surgery, radiation oncology, interventional oncology and other specialists may add possibilities.
Get Another Opinion
A second opinion can confirm a plan, challenge it or uncover an option you have not heard yet.
Take Notes
Bring questions. Bring someone you trust. Ask whether you can record the conversation. Keep copies of important records.
Ask About Trials
Clinical trials are not only a last resort. Ask whether one belongs in the conversation now or later.
Report What You Feel
Side effects, pain, changes and worries matter. You are not complaining. You are giving your team information.
Name What Matters
Your goals, family, work, travel, comfort, fears and definition of quality of life belong in treatment decisions.
Questions that can change the conversation.
You do not need to ask all of them. Circle the ones that matter today.
You are allowed to...
Advocacy isn't fighting your doctor.
It is making sure you are part of the conversation. The strongest care can happen when patients and clinicians bring their expertise to the same table: your medical team knows medicine. You know you.
Bring Say YES to Hope into the conversation.
Sometimes advocacy begins with one person helping you organize the questions, find the right specialist, understand a test or simply believe there may be another road worth exploring.
Your voice matters.
Your questions matter. Your priorities matter. You matter.
And when you need another voice beside yours, we are here.
